Date / Time |
18 Nov 2016 (Fri) - Physicians & Health Officials |
0800 – 0830 |
Registration |
0830 – 0930 |
The Impact Of Rare Diseases In Asia Moderator:
|
0930 – 0935 |
Video: Spinal Muscular Atrophy |
0935 – 1015 |
Tea Break |
1015 – 1230 |
Physicians & Health Officials: Understanding a Rare Disease Registry Guest Speaker: |
1230 – 1400 |
Lunch Patient Support Organisations: Poster Sharing Session – Group B |
1400 – 1530 |
Physicians & Health Officials: Strategic Framework for Rare Diseases Hosted by: Guest Speaker: |
1530 – 1600 |
Tea Break |
1600 – 1700 |
Physicians & Health Officials: Strategic Framework for Rare Diseases (Continued) |
Date / Time |
18 Nov 2016 (Fri) – Other Delegates |
0800 – 0830 |
Registration |
0830 – 0930 |
The Impact Of Rare Diseases In Asia Moderator:
|
0930 – 0935 |
Video: Spinal Muscular Atrophy |
0935 – 1000 | Introduction To Plenary Workgroup Meetings (Level 2, Ballroom 1) Topic: Understanding the Impact of Rare Diseases in Asia Content Partner: AMICULUM Presenters: Ms Jenny PUTIN (AMICULUM Asia) Ms Stefanie CHUAH (AMICULUM Asia) Workgroup 1: Patient Support Organisations Workgroup 2: Patients & Caregivers Workgroup 3: Pharmaceutical Representatives |
1000 – 1030 |
Tea Break |
1030 – 1230 |
Concurrent Plenary Workgroup Discussions Workgroup 1: Patient Support Organisations
|
1030 – 1230 |
Workgroup 2: Patients & Caregivers Facilitators: |
1030 – 1230 |
Workgroup 3: Pharmaceutical Representatives Facilitators: |
1230 – 1400 |
Lunch Patient Support Organisations: Poster Sharing Session – Group B |
1400 – 1530 |
Concurrent Stakeholder Training Sessions Group 1: Patient Support Organisations Participation in Healthcare Decision Making Group 2: Patients & Caregivers Caring for the Caregiver |
1530 – 1600 |
Tea Break |
1600 – 1700 |
Concurrent Stakeholder Training Sessions (Continued) Group 1: Patient Support Organisations Communication Strategies for Rare Diseases: Uncommon Opportunities Group 2: Patients& Caregivers Caring for the Caregiver |
Date / Time |
18 Nov 2016 (Fri) – Children & Youth Activities |
0900 – 1700 |
Shire Rare Kids Discovery Booth |
1000 – 1200 |
Art Therapy Workshop II: Feelings & Colours |
1400 – 1600 |
Music Workshop: The Art of Music Making |
Hotel Pullman Bangsar
No Tower 3 59200, 1, Jalan Taman Pantai,
Taman Bukit Pantai, 59100 Kuala Lumpur,
Wilayah Persekutuan Kuala Lumpur, Malaysia
Phone: +60 3-2298 1888