Programme Outline

17 NOVEMBER 2016

Keynote

• Making Rare Diseases an Asian Health Priority

Title Sponsor Lunch Address – By Invitation

• Public Health and Rare Diseases

Medical Panel

• Definition & Challenges in Rare Disease Management

Stakeholders Panel

(Targeted at Patients, Caregivers, Allied Healthcare Professionals, Therapists & Patient Support Organisations)

• Building a Multi-stakeholder Eco-System for Rare Diseases

Networking Session - By Invitation

(Invited Guests: Physicians, Health Officials, Pharmaceutical Representatives, Patient Support Organisations)

• Making the Voice of Rare Diseases Heard in Asia

18 NOVEMBER 2016

Plenary Workgroup Meetings

• Understanding the Impact of Rare Diseases in Asia
• Strategic Planning for Rare Diseases
• Access for Medication

Stakeholder Training Sessions

• Effective Communication Skills
• Participation in Healthcare Making Decisions
• Strategic Planning for Rare Diseases
• Caring for the Caregiver

19 NOVEMBER 2016

• Overcoming the Impact of Rare Diseases in Asia